This past Winter, 600 guests filled the Grand Ballroom of The Woodlands Resort to raise funds and share the message of HOPE for The Will Herndon Research Fund at the 11th annual HOPE Under the Stars event. The guests experienced a genuine glimpse into the world of Will Herndon, a 16 year old Woodlands resident that has been battling a rare degenerative brain disease called juvenile Batten disease. The evening’s theme transformed the ballroom from black and white to a world full of color and HOPE. The transformation represented the hope and optimism personified by Will and his love for life. The event honored long-time supporters, Dr. Scott and Amy Young and corporate honoree, Waste Connections for their overwhelming support.  The event raised over $570,000 for research and funding for the anticipated clinical trial to begin in early 2020.
“The Woodlands community embraced Will as their own son and stood by our family, funding research and sharing prayers to help save our boy,” said Missy Herndon, Co-Founder of HOPE: The Will Herndon Fund. “After 11 years of support, awareness and fundraising, we are excited to share Will will be in a clinical trial in the coming month.”

For more information on juvenile Batten disease and the fight to Save Will visit www.willherndon.org or www.beyondbatten.org

Photography Courtesy Derrick Bryant & Jen McDonald

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